Oh how terrible this is…
Our cousins that have the little boy Asher who has cystic fibrosis (the one we walked for a few years back) decided to try for another child as there was a slim chance they would have another child with the same complications. Well…the doctors were right…definitely not the same…much worse.
“Paxon has a deletion on chromosome 4, which our counselor said is unfortunately a big one. He said that babies with this deletion can have short stature, heart problems, severe to profound mental retardation, and usually die before they are 6 months old.”
I am pretty sure that is the worst thing to ever hear as a parent. I should be grateful that the only problems my son has are emotional ones. I can’t imagine anything worse than burying your child.
I had another friend lose her one year old a few weeks ago to Leukemia. It amazes me how these parents have the will to continue living after their children cease to. I can say without hesitation that I wouldn’t be able to survive it.
1 year ago • Notes